I am the mom of a 10 year old son with Cystic Fibrosis (Ty) and an 11 year old son without CF (Bran). This is my journey as I balance Ty's needs while giving Bran the love and attention he deserves.

Thursday, July 22, 2010

No Place Like Home

We busted out!

      Flew the coop!

            Bid farewell!

                   We were released from the hospital and now we're back home!!

Hospital Day 13 (Tuesday)

Tuesday I woke up feeling terrible. I felt incredibly weak and all I wanted to do was lay down and sleep. So that's pretty much what I did... all day long!  The nurses stepped in and made sure Ty was well taken care of and had plenty of company.  I did manage to get up and play the Wii for a little while.

Hospital Day 14 (Wednesday)

Today was Ty's birthday! It was certainly one to remember! So many people came together and raised money to make Ty's wish come true.... to have a "PSP Go".  The generosity, love and support of complete strangers is mind-boggling. No matter how bad things get for us, there will always be so many other families that have it worse. One of my weaknesses is not acknowledging the strength, faith and test of endurance that our family faces on a daily basis. When people tell me that they could never do what I do, that I'm one of the strongest people they have ever met... I feel like I don't deserve that, that what I do is not extraordinary. To be honest, it hurts to think about it. When I make myself stop and acknowledge the struggle that we face and attempt to conquer each day, it simply brings me to tears. I don't want this for my life, I don't want it for my family and I certainly don't want to see my son fight to breathe.

I know with all my heart and soul that God chose me to be Tyler's mom.

He saw something special, something strong, unmoving, determined, spirited and able to carry the load.

WOW! God has high hopes doesn't he!!  ☺

I firmly believe that families of special needs children are hand-picked, chosen with purpose. I also believe that all of us possess the above characteristics and that sometimes they're only accessible through God's mercy and grace.

We are certainly no better than other families who take care of sick, elderly or disabled loved ones. There are  families who adopt children knowing of their medical conditions, people who voluntarily choose to care for the sick and disabled. All of these people are gifts sent from above. They too, I believe, are hand-picked for the task at hand.

My favorite saying, the one that helps me keep pushing is, "God will never put more on me than I can bear".  I also love the song by Kirk Franklin with this verse in it.

In closing I would like to thank the many people who give to causes that don't directly affect them. It is so easy to fight for a cure for Cystic Fibrosis when your child suffers from it, but how many of us would be so involved if it didn't directly affect our loved ones?

The people that reach out to help others in need, often times complete strangers, are also special, hand-picked gifts from God.

They are equipped with hearts so big, smiles so warm and arms so giving that no other source could possibly provide.

These are the people that I look up to.

These are the people that I hope to become.

These are the people that can touch a child and leave a lifetime of precious memories.

These are the people that humble us as parents.

Thank you for being such an incredible blessing to our family.

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