Our clinic visit was yesterday, we were excited to see how high Ty's PFTs (lung function) were. We were also going to get his PICC line removed since the doctor allowed us to keep it for an extra week. Ty did his lung function test and could only get up to 44%. He struggled with pushing air out and would start coughing pretty quickly. He turned around and looked at me and said he didn't have any air in his chest and that it was hard to breathe. That hurt.
From that point until the doctor walked in I knew that we were in big trouble. I could hear the doctor talking about Ty in the hallway, saying he had never seen anyone drop half their lung function in just 1 week. He even went and talked to the PFT guy to make sure he had done the test right. Ty was given 4 puffs of Albuterol and the test was repeated. His 1st blow was his best @ 51% and he went downhill from there.
We were immediately admitted into the hospital and a few things were added to our treatment schedule. We're now doing oxygen, prednisone and tobramycin.
Confession time: I've always seen our CFers with oxygen on but let me tell ya, it takes on a whole new meaning when you see your own son with it. It hurts, it ties my stomach in knots and it gives me a much deeper appreciation for fellow CF families and patients.
Overnight Ty's oxygen level dipped to 88 and 89. With the oxygen he's back up to 97.
That's all for now.
From that point until the doctor walked in I knew that we were in big trouble. I could hear the doctor talking about Ty in the hallway, saying he had never seen anyone drop half their lung function in just 1 week. He even went and talked to the PFT guy to make sure he had done the test right. Ty was given 4 puffs of Albuterol and the test was repeated. His 1st blow was his best @ 51% and he went downhill from there.
We were immediately admitted into the hospital and a few things were added to our treatment schedule. We're now doing oxygen, prednisone and tobramycin.
Confession time: I've always seen our CFers with oxygen on but let me tell ya, it takes on a whole new meaning when you see your own son with it. It hurts, it ties my stomach in knots and it gives me a much deeper appreciation for fellow CF families and patients.Overnight Ty's oxygen level dipped to 88 and 89. With the oxygen he's back up to 97.
That's all for now.
