tag:blogger.com,1999:blog-643490102017573726.comments2010-08-07T17:19:24.844-07:00Sometimes Sun, Sometimes RainJessiehttp://www.blogger.com/profile/03891935802379902967noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-643490102017573726.post-29152566121828905262010-08-07T17:19:24.844-07:002010-08-07T17:19:24.844-07:00This is so rad!!This is so rad!!Anonymoushttps://www.blogger.com/profile/08931297334966057218noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-28364820491291612572010-08-02T07:49:47.388-07:002010-08-02T07:49:47.388-07:00Jess,
We got the packet to fill out for a wish, b...Jess,<br /><br />We got the packet to fill out for a wish, but I like you want it to be so special for Trevor and we think maybe we should wait a little longer....until he is sure what he wants to wish for. I hope Ty really has a great time. Has he decided yet...what to do?Gail Frazierhttps://www.blogger.com/profile/12127892305380254999noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-46186574387858132452010-07-29T08:23:59.205-07:002010-07-29T08:23:59.205-07:00She flushed with saline and also tried the Heparin...She flushed with saline and also tried the Heparin to see if it would clear the line. The line wasn't 100% blocked but it was blocked enough that we couldn't get a blood return. We went to UNC and had them put another flush in the line. I'm not sure what they used because I forgot to ask! Ugh!! We had to wait for 2 hours for it to work and thankfully it did. We're back home and have the IVs running again. ☺Jessiehttps://www.blogger.com/profile/03891935802379902967noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-12839601840553811442010-07-27T21:29:39.557-07:002010-07-27T21:29:39.557-07:00One Question about the Nurse and the PICC line.
...One Question about the Nurse and the PICC line. <br /><br />Why was she flushing it with Heparin and not the saline flush?<br /><br />Heparin is an anticoagulant which keeps the blood from clotting and is what keeps the line open.chillcutthttps://www.blogger.com/profile/10836619840661191783noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-23902461132301005332010-07-16T19:26:13.322-07:002010-07-16T19:26:13.322-07:00Hey! I read your blog. And it's funny how we (...Hey! I read your blog. And it's funny how we (CFers) can relate to things. Like the blood being drawn so freakin early & the horrible beeeeep of the IV machine. I hate those things as well! But not just that, but what you said about when he Coughs. I know that people look at me weird. But we can't help it...ya know!? But it does make me feel a little embarrased when i cough and cough and cough for like 15 mins straight. But anyways, I'm just thankful for others out there I can relate to, and help deal with this disease. But I hope things improve FAST! Being trapped in a hospital room isn't fun for a child. But it can be miserable for an adult too. But his health is most important. Talk to ya soon! ♥ ♥ ♥Caseynoreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-16706149060555787572010-07-12T18:48:49.291-07:002010-07-12T18:48:49.291-07:00You and your family are definitely in my prayers. ...You and your family are definitely in my prayers. And, I would definitely make a stand against that nurse!Amandahttps://www.blogger.com/profile/07196720430358548366noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-80848698961872113832010-07-10T18:57:40.538-07:002010-07-10T18:57:40.538-07:00I am so sorry that he ended up in the hospital. I ...I am so sorry that he ended up in the hospital. I will definitely be praying for you and your family!Amandahttps://www.blogger.com/profile/07196720430358548366noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-57956952538729862122010-07-10T12:39:31.877-07:002010-07-10T12:39:31.877-07:00Jessie,
Thanks for your suggestion on my blog a fe...Jessie,<br />Thanks for your suggestion on my blog a few weeks ago. I took your advice and now have my own symptom notebook. That was a great idea! I have also enjoyed reading your blog. I'm praying that Ty's PFTs are better soon! Thanks for your candid thoughts!<br />Breck<br />http://bennettgamel.blogspot.comBGhttps://www.blogger.com/profile/06373281991796003525noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-65804785969853904512010-07-09T18:31:12.335-07:002010-07-09T18:31:12.335-07:00Thanks for the feedback ladies! The doc are pretty...Thanks for the feedback ladies! The doc are pretty confident that we'll get Ty's numbers back up. I hope you and your CFers are doing well!!!!Jessiehttps://www.blogger.com/profile/03891935802379902967noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-66168979722276062752010-07-09T14:51:40.861-07:002010-07-09T14:51:40.861-07:00I am sorry to hear you are in the hospital and tha...I am sorry to hear you are in the hospital and that his PFT's are so down. Here is some good news....it doesn't mean it is permanent. Kaleb blew 51% from 75% in February when he got sick. He is back up to 75% as of today!!! Praying for your son and you guys!Kristi Bowershttps://www.blogger.com/profile/12813716533036843415noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-62849693056468326002010-07-09T12:37:19.985-07:002010-07-09T12:37:19.985-07:00I am so sorry to hear that he got admitted. And I ...I am so sorry to hear that he got admitted. And I know what you mean about the oxygen even though my Courtney has only had to have it a few times why in club med and 3 of those times is when we was 10-12 months old..Mandiehttps://www.blogger.com/profile/13569663621678799608noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-65398243937091416532010-07-08T07:35:10.263-07:002010-07-08T07:35:10.263-07:00You can also get those at sports stores! I am a co...You can also get those at sports stores! I am a coach and we have those in our med kit for athletics!!Kristi Bowershttps://www.blogger.com/profile/12813716533036843415noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-72069308439078762212010-07-05T11:54:31.644-07:002010-07-05T11:54:31.644-07:00Don't feel alone there are many times when it ...Don't feel alone there are many times when it comes time for Courtney to do her nebs I will put the med in them and once she is done I still find the med in there.. I struggle with this at times but she will tell me she doesn't like them. Lets just say this she has red hair and the temper to go with it.Mandiehttps://www.blogger.com/profile/13569663621678799608noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-60897243146329045492010-07-05T10:35:24.859-07:002010-07-05T10:35:24.859-07:00Hi, I wondered over here from the Groettum blog......Hi, I wondered over here from the Groettum blog... enjoyed reading your blog... MarcyLovin Lanehttps://www.blogger.com/profile/04809723188104983332noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-38463488004395197802010-07-02T15:43:01.621-07:002010-07-02T15:43:01.621-07:00new follower - LOVE the blog.
Good job on switch...new follower - LOVE the blog. <br /><br />Good job on switching CF teams. Sounds like you made a healthier decision!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-43587972758067592532010-07-02T12:10:05.363-07:002010-07-02T12:10:05.363-07:00I look back now and feel bad for my sister. My par...I look back now and feel bad for my sister. My parents were married at the time. When I was sick my mom would always come with me (dad can't do hospitals he almost passed out once from the PICC), and that left my dad with my sister. He would always try and take her to do cool things or let her stay with friends or whatever -over indulgence wasn't the answer either. But she really craved the bond my sister and I had, and she still doesn't have. My mom tried but my sister just has up this wall. <br /><br />My sister was always the healthy one too. Until our teens years -then she really started acting out. She would make up health things wrong with her or get in trouble with the law just for attention. She is better now -but thats b/c she really does have some medical issue now and she has a better understanding and regrets how she acted. <br /><br />Being a parent is a HARD job, whether its to the CFer or the non-CFer.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-10086415343669311322010-06-30T11:19:26.692-07:002010-06-30T11:19:26.692-07:00Just wanted to say welcome to the Blogging World! ...Just wanted to say welcome to the Blogging World! I have a 6 1/2 year old son with CF, and a 5 year old daughter, without. Your boys are adorable. <br /><br />My daughter misses her brother while we are in the hospital, but, we found an awesome family to watch her (Azer's Kindergarten teacher, couldn't ask for anything better!). She actually got excited at the last admission. She has become more independent than my son, possibly because she was required to.Lydia Russellhttps://www.blogger.com/profile/15185110070411224807noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-71276216240750189462010-06-29T20:35:30.982-07:002010-06-29T20:35:30.982-07:00I WAS the healthy child growing up. My younger sis...I WAS the healthy child growing up. My younger sister was the one with CF. Now, I'm 26 and she is 22, and even now it's not really any easier. But, I've grown to accept it more. So, oddly enough, as a 26-year old, I can say that I can relate to Brandon. I was always torn between wishing it wasn't my sister, wishing I could take it for, but yet being glad that it's not me, wanting to speak up and say "Hey, what about me?" but yet knowing that that's kind of selfish. I'm glad that Brandon feels like he can come to discuss his feelings about it with you. I never felt that way with my Mom. Just goes to show that you are doing something right!<br />~AmandaAmandahttps://www.blogger.com/profile/07196720430358548366noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-29489142827723058912010-06-29T19:47:11.614-07:002010-06-29T19:47:11.614-07:00Thanks so much for sharing! Just to add...my brot...Thanks so much for sharing! Just to add...my brother never complained. To this day I know he is not resentful. He just knew that's how it had to be. On a positive note, I think it made him a more loving and compassionate person in the end!Staceyhttps://www.blogger.com/profile/08558341367213981372noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-75674630168434778792010-06-29T09:54:25.055-07:002010-06-29T09:54:25.055-07:00Thanks a million ladies!! I sure do appreciate it!...Thanks a million ladies!! I sure do appreciate it!Jessiehttps://www.blogger.com/profile/03891935802379902967noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-79920333431244135672010-06-29T01:38:10.432-07:002010-06-29T01:38:10.432-07:00I'm jessica 23 with cf and cfrd I wanted to sa...I'm jessica 23 with cf and cfrd I wanted to say hi and welcome you to the blogging world. =)Jessx0x0https://www.blogger.com/profile/03214213745314514707noreply@blogger.comtag:blogger.com,1999:blog-643490102017573726.post-55775685131315929302010-06-28T23:17:19.911-07:002010-06-28T23:17:19.911-07:00new follower!! i will post about you blog in my ne...new follower!! i will post about you blog in my new post!Anonymoushttps://www.blogger.com/profile/08931297334966057218noreply@blogger.com